Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: the patient perspective
Abstract Background Numerous instruments are available to measure health-related quality of life (HRQoL) in patients with Chronic Obstructive Pulmonary Disease (COPD), covering a wide array of domains ranging from symptoms...Full Article
Protocol driven palliative care consultation: Outcomes of the ENABLE CHF-PC pilot study
Background: Little has been reported about protocol-driven outpatient palliative care consultation (OPCC) for advanced heart failure (HF). Objectives: To describe evaluation practices and treatment recommendations made during protocol-driven OPCCs for advanced HF....Full Article
Cancer patient-reported outcomes assessment using wireless touch screen tablet computers
Purpose To assess the feasibility of collecting patient-reported outcomes data with wireless touch screen tablet computers in the adult oncology palliative care setting. Methods Patients were provided with tablet computers...Full Article
Validity of two new patient-reported outcome measures in systemic sclerosis: Patient-reported outcomes measurement information system 29-item health profile and functional assessment of chronic illness therapy–dyspnea short form.
Abstract Objective Many patient‐reported outcome (PRO) instruments used in systemic sclerosis (SSc) trials are limited by lack of validation, licensing fees, and complicated scoring systems. We assessed the construct validity...Full Article